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Post by Deleted on Oct 9, 2012 13:56:05 GMT
Jacks - I think it may well come to me ordering online if I can't sort anything else out through a more conventional route. I have to renew my HRT prescription soon and am going to ask for oestrogel as opposed to the Elleste that I currently use as a first stop, I can use the dregs from my husbands testosterone sachets also, but I am nervous about meddling with thyroid as I know it is quite a complex issue.
Susan - my GP wanted to refer me because she couldn't explain why I would feel so tired and lethargic with zilch libido. She had already discounted thyroid treatment because as far as my blood results were concerned I didn't need it - even when I gave her the private results which were higher in less than a month, so she conceded my TSH seems to be rising. I broached testosterone with the surgery ages ago and that was a definite no-no. She thought a consultant might find 'something she had missed' but he didn't and shared her views of thyroid levels. I even took a list in with me, outlining symptoms and gave it to him, feeling cold, lethargic, muscle and joint aches and pains, no energy, very dry skin etc. etc. He asked if I had lost weight and I told him I was actually putting weight on for no apparent reason. I actually looked into Fibromyalgia last night and was interested to see that many who thought they were fibro sufferers were much improved by thyroid medication. More food for thought.
Pinky - I have been taking Vit D for ages now and I do think it helps but with Winter coming on, I just know the aches will be worse. I try to go to the gym four or five times a week so it isn't a lack of exercise either.
Rusulka - I take your point about taking info into the GP but it honestly doesn't work - they have their guidelines and they stick to them rigidly. If something can be prescribed, but off licence, they will not do it. I can't really fault them in any other way,but regarding hormones, they are very reticent. I haven't even been brave enough to confess to my GP that I am using utrogestan every other night vaginally. I was the first person she had prescribed it for so I didn't want to chance admitting that I was straying off the straight and narrow path!
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Post by jacksfullofaces on Oct 9, 2012 14:00:54 GMT
jaycee
A very tiny dose won't hurt you - give it a two month trial and see how you feel. It is very easy to judge if your thyroid is over stimulated - the effects are very obvious. You are right about GP protocol - most of them adhere to it. I got mine to break the rules by using a mixture of techniques. We know what makes each other tick and he says he enjoys seeing me because I don't whine.
The thyroid can affect sexual libido - mine improved with thyroid hormone.
Jacks
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Post by Deleted on Oct 9, 2012 14:21:24 GMT
Jacks - I think my options have become very limited so I will look into it. As you say, I will soon know if I feel better or not won't I? Susan - this is the link to the interesting stuff I read last night re: fibromyalgia/hypothyroidism. www.stopthethyroidmadness.com/fibromyalgia/ |
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susan
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Post by susan on Oct 9, 2012 14:28:25 GMT
Jaycee
Sounds like you have a plan to go forward anyway. Hope you didn't mind me mentioning Fibro, but I think if you try a small amount of thyroid medicine and it sorts you out you will have your answer. Perhaps that was what I needed or should have been on all along..
The trouble is so many conditions seem to have similar symptoms ie muscle and joint aches and pains, lethargy, no energy, decreased libido, depression etc with Fibro you also feel cold, but it is weird insofar as just one part of you can feel cold ie the upper arm on one side from elbow to shoulder - that is quite a distinct symptom. It's often the little things you find out that further help with diagnosis.
I hope you manage to get it sorted soon.
Thanks for the article.
xxxx
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Post by jacksfullofaces on Nov 19, 2012 11:27:56 GMT
My thyroid has been going completely crazy. The wretched thing went into a frenzy and started pumping out thyroid hormones so fast that my heart raised it's beat in protest. I had an appointment with my GP and went armed with the details of a private scan service if needed. My doctor was wonderful - he glanced at me and immediately turned off the fire and took my pulse which was racing at 130. I gave him a list of symptoms including insomnia, racing heart,sweats, loose bowels, irritability and a sore throat and looking me in the eye he said "and you choke everytime you eat something"
I nodded agreement and the scan is booked for a fortnight's time. I was given a prescription for beta blockers and no longer feel as though I am being force fed speed.
Jacks
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gobe
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Post by gobe on Nov 19, 2012 12:01:04 GMT
Glad to hear your GP was so understanding Jacks.  |
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Post by jacksfullofaces on Nov 19, 2012 18:46:09 GMT
Thanks Ladies
I'm going to get to the bottom of this thing - my Gp says first get scan done then maybe a second anti body test - anyhow he saved us some money the other day with the scan and has been very decent after the horrible specialist refused to see me.
My husband is going to bake him a cake for Christmas as a thank you gesture
Jacks
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gobe
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Post by gobe on Nov 19, 2012 22:24:49 GMT
What a nice husband you have Jacks!
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Post by jacksfullofaces on Nov 20, 2012 9:20:37 GMT
Gobe
My husband is a sweetheart even though he had a tantrum because he lost at chess last night. Truth to tell I'm partly to blame because of the number of disturbed nights we have suffered recently but hopefully things will improve now.
Jacks
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Post by jacksfullofaces on Nov 20, 2012 18:41:57 GMT
Pinky
I have the scan next week. The beta blockers have been amazing so I'm just enjoying feeling human and I can't waste time feeling good worrying - that would defeat the object of the beta blockers.
I think your family member should try thyroxine - nothing to lose
Jacks
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Post by jacksfullofaces on Nov 21, 2012 21:44:54 GMT
When I saw my GP last week after he sorted out my scan he said " your blood references are okay" so I replied "bugger the references I'm a person not a lab result" and he laughed and agreed.
Jacks
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Post by jacksfullofaces on Nov 28, 2012 17:54:37 GMT
Tomorrow is the hunt the thyroid day when I get my scan. Today I have been reading through Management of thyroid disease and very interesting it is to understand the rationale behind the theories rather than just the do as I tell you approach.
Amazon often offers medical books for decent prices but because they are aimed at doctors many people are deterred from reading them. I think this can be a mistake - these books are often easier to read than the dumb down books.
I also got a good price with a used copy costing £8 rather than £100
Jacks
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gobe
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Post by gobe on Nov 28, 2012 22:25:48 GMT
Good luck for tomorrow Jacks! xx
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Post by jacksfullofaces on Nov 29, 2012 9:18:14 GMT
thank you Gobe and Lainey
xxx
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Post by jacksfullofaces on Nov 29, 2012 12:23:25 GMT
Sweetpea
Thank you
Jacks xx
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Post by jacksfullofaces on Nov 30, 2012 11:35:43 GMT
Latest update
thyroid shows atrophy and two cold nodules. The person doing the scan thought it was not Hashimoto but according to the books I have - read almost every clinical sign points to Hashimoto Disease.Apparently the signs showed a goiter years ago - couldn't have been prominent or I would have spotted it.
He said my thyroid has been in a battle and told me to talk to my specialist I laughed and told him the specialist had refused to see me. Will be seeing my GP in about a fortnight.
I think I had Graves years ago and it has burned out and become Hashimoto - either that or another form of Thyroiditis but using blood references it seems unlikely.
Very puzzling but it will get cracked and I'm not too bad on the beta blockers.
Jacks
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gobe
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Post by gobe on Nov 30, 2012 14:09:47 GMT
What are cold nodules?
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Post by jacksfullofaces on Nov 30, 2012 14:55:15 GMT
Gobe Nodules are very common in the thyroid. Hot ones are active and produce thyroid hormone independently of the thyroid (nasty little buggers) cold nodules are inactive. 50% of women have nodules and mainly they are harmless. 5% can be cancerous but this is more likely to be found in men and when there is a solitary nodule. I have really been studying thyroid disease  Jacks |
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Post by gobe on Nov 30, 2012 17:40:27 GMT
Thanks for the explanation Jacks. |
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Post by jacksfullofaces on Dec 31, 2012 11:02:11 GMT
Saw my GP this morning and lo and behold he didn't have the results of the scan so I gave him the clinical findings and suggested testing for Graves anti bodies. Nada NHS won't approve the test and will refuse. I looked him in the eye and asked what blood tests he would recommend I had if he ignored NHS protocol. He immediately wrote out a chit for me to get tested at a private hospital.He has referred me to a dermatologist for my hair and has agreed I can get a wig minus the VAT which is good because if I buy one it will be a nice saving. He is also arranging a 24 hour heart monitor.
Jacks
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Post by jacksfullofaces on Jan 1, 2013 21:19:57 GMT
Further blood tests scheduled tomorrow evening for Graves. This is getting to be a costly aggravating process .
Jacks
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Post by gobe on Jan 2, 2013 2:38:41 GMT
Good luck Jacks. I will be thinking of you too. xx
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Post by jacksfullofaces on Jan 3, 2013 9:54:05 GMT
Latest update - blood samples duly taken. There was a delay because they couldn't decipher my doctor's hand writing and telephoned the surgery. There was a huge twitter at the end of the phone when the rfeceptionist was informed that it wasn't the local dump but a private hospital checking details. The irate blood taker calmed down after my GP charmed her.
Blood test results back within 48 hours and she was extra nice and said if my husband dropped in she would give him an off the record copy.
It isn't that I don't trust my doctor but results often go astray in the system.
Jacks
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Post by jacksfullofaces on Jan 7, 2013 18:44:05 GMT
My thyroid results have returned - looks like an inflamed thyroid - could be Graves or it might be about to burn out. The test showed thyroglobulin antibodies at 358.2 iu/mL normal range 0-115 (NHS refused me this test)
My thyroid Peroxidase levels though had fallen to almost normal and I know why. Uzzi Reiss recommends DHEA to support the immune system and suppress auto immune attacks and since using the supplements my levels have fallen from 96 to 37.41. I will keep on with the DHEA.
Jacks
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gobe
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Post by gobe on Jan 9, 2013 12:02:16 GMT
I'm sorry to hear this Jacks. What is your next step now? xx
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Post by jacksfullofaces on Jan 13, 2013 15:48:30 GMT
The next step Gobe is to talk to my GP. Husband is seeing him at the end of the month so I will mention the results then. I'm thinking if there is anything he can do he will notify me. I think I might have to wait for the wretched thing to self destruct.
Jacks
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Post by jacksfullofaces on Jan 14, 2013 10:43:09 GMT
You know I could easily provide a left hook to these idiots - but the thyroid is usually wimmins things so like menopause it is down graded. Jacks  |
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Post by jacksfullofaces on Jan 25, 2013 10:36:22 GMT
The thyroid I have disowned arrived the other night at 2.am. I awoke in a fit of blind panic as the pillow demon smirked in my direction. I spent the entire night locked in a relentless circle of panic and irrational thoughts. I reached out for the estrogel but it had no effect because the disowwned thyroid was the guilty party. I hate to think how life would be if sweats were caused only by menopause and no estrogel. Husband, cats slept fitfully while I tried to drowse. The slightest noise (puking cat in hall) awoke and irritated me. I wanted to scream out loud but remained quiet and sipped at water. The itchy burning skin are thyroid related. I'm going to throw a party when this revolting Hashimoto burns the thyroid out. It is not widely known but Hashimoto has a rare variant which causes hashitoxicosis ( over active thyroid) the doctor has given me a low dose of beta blockers which keep the worst of it at bay. Actually I think I am showing regrowth where I had lost hair at my temples so something is happening.
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Post by rusalka on Jan 25, 2013 10:56:46 GMT
The thyroid I have disowned arrived the other night at 2.am. I awoke in a fit of blind panic as the pillow demon smirked in my direction. I spent the entire night locked in a relentless circle of panic and irrational thoughts. I reached out for the estrogel but it had no effect because the disowwned thyroid was the guilty party. I hate to think how life would be if sweats were caused only by menopause and no estrogel. Husband, cats slept fitfully while I tried to drowse. The slightest noise (puking cat in hall) awoke and irritated me. I wanted to scream out loud but remained quiet and sipped at water. The itchy burning skin are thyroid related. I'm going to throw a party when this revolting Hashimoto burns the thyroid out. It is not widely known but Hashimoto has a rare variant which causes hashitoxicosis ( over active thyroid) the doctor has given me a low dose of beta blockers which keep the worst of it at bay. Actually I think I am showing regrowth where I had lost hair at my temples so something is happening. Jacks, sorry for you bad night,I had the similar one behind me! It's very interesting what you wrote about burning skin and thyroid!I never heard it before! I'm on 25 mg L-Thyroxin and my TSH level was 2 weeks ago 1.13, but I don't know about the ft3 and ft4, because the gyno is saving the money and don't check this two hormones regularly. I wondered a little, because my TSH was always abut 2, even on hormones, higher dose of L-thyroxin caused me heart racing and extremely nervousness, like being hyper. I thought if it's maybe possible that due to progesterone ( which is supposed to regular low thyroid) maybe I have now too high levels ( for my individual constitution) and this is worsening my anxiety and nervousness? What do you think? I'm taking now 100mg progesterone vaginal and maybe this already has some influence on the thyroid. I also took beta blocker for a while, they helped me with too fast pulse, but now my pulse is normal ( about 80), I'm only nervous like hell and anxious with irrational thoughts too. It's so hard to find the real reason for the symptoms  |
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Post by jacksfullofaces on Jan 25, 2013 12:53:50 GMT
Rusalka
I was diagnosed with Hashimoto and it swings between hypo and hyper. A while ago I was taking thyroxine for low thyroid then it swung hyper and I'm on beta blockers. Check out Hashitoxicosis. I have medical books which discuss the swing which can occur with Hashimoto Disease.
My TSH T3 and T4 blood references read normal (raised thyroglobulin antibodies and peroxidase which I had to pay £157 to get done because NHS refused to do them) but I get nasty symptoms which my doctor tries to keep up with. When my thyroid was scanned it showed extensive damage and inflamation. I had the remains of a goiter.
One doctor told me that if estradiol in a decent dose doesn't prevent sweats and flushes then it is either being absorbed badly (patches) or something else is causing the problem.
If I get a thyroid induced sweat my estrogel has no effect on it.Like you I also need large amounts of progesterone. I think the thyroid issue reduces progesterone in circulation - thus increasing agitation - near my period I often use extra progesterone.
I was talking to my GP the other day and we agreed that dealing with a thyroid disease involved detective work and to expect the unexpected.
My husband keeps an eye on me and asks me questions if I am snappy and that helps me to watch my thyroid function.
I bought Clinical Management of Thyroid Disease on Amazon and got it second hand. I like it because it is written for doctors and doesn't offer snake oil theories.
However I use DHEA which Uzzi Reiss recommends for auto immune disease and my peroxidase levels have ffallen to 37 from over 150 in three months.
If I were you I would check out all symptoms for hyper and see if you are swinging - if this is the case a low dose of beta blocker might help you.
Jacks
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